Medical Information Statement -
The information on this website is for educational awareness purposes only and not meant to take the place of a physician's medical diagnosis, advice or office visit. We are not offering personal, individualized or group medical advice. Please see a doctor as soon as possible if you have an urgent medical condition on any level.
SCAHillsborough PRIVACY STATEMENT -
Your privacy is important to us. This privacy statement provides information about the personal information that SCAHillsborough collects, and the ways in which SCAHillsborough uses that personal information. We will not purposely sell your information or give it to random people to do as they will with your information.
Personal information collectionSCAHillsborought may collect and use the following kinds of personal information:* Your name and email address.Using personal information -
SCAHillsborough may use your personal information to:* Email you a Newsletter or event update if you signed up to receive them* Send you more information to if you emailed a board member for more information* Send you emergency updates if there are ever any concerning event changes* Post your name or picture on our website if you attended on of our events
Where SCAHillsborough discloses your personal information to its agents or sub-contractors for these purposes, the agent or sub-contractor in question will be obligated to use that personal information in accordance with the terms of this privacy statement.
In addition to the disclosures reasonably necessary for the purposes identified elsewhere above, SCAHillsborough may disclose your personal information to the extent that it is required to do so by law, in connection with any legal proceedings or prospective legal proceedings, and in order to establish, exercise or defend its legal rights.
Securing your data -
SCAHillsborough will take reasonable technical and organizational precautions to prevent the loss, misuse or alteration of your personal information.
SCAHillsborough will store all the personal information you provide as securely as possible.Information relating to electronic transactions entered into via this website will be protected by encryption technology.
Cross-border data transfers -
In addition, personal information that you submit for publication (i.e. comments on blog post) on the website will be published on the internet and may be available around the world.
You agree to such cross-border transfers of personal information.
Updating this statement -
Other websites -This website contains links to a number of health site, Mailchimp, Constant Contact and Scribd websites.
SCAH is not responsible for the privacy policies or practices of any third party.
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To break the sickle cycle and find a cure
The mission of the Sickle Cell Association of Hillsborough County, Inc. is to help individuals with sickle cell conditions live lives that are, to the maximum extent possible, unhampered and uncompromised by their sickle cell conditions.
The Sickle Cell Association of Hillsborough County was established in 1976. For over 35 years, it has provided materials to educate persons with sickle cell concerning medical, sociological, and psychological implications of sickle cell disease and trait. Counseling is provided to individuals and families diagnosed through the Newborn Screening Program. Educational programs are conducted to community groups, health care providers, and public and private schools. The organization also provides medical and social services referrals to individuals and families affected by disease.
Our OUTREACH programs seek to do the following:
Our board is committed to educating Hillsborough County concerning Sickle Cell Anemia
Councilman Frank Reddick
President and CEO
Mr. Reddick is not only the President & CEO of the Sickle Cell Association of Hillsborough County, but also a Tampa City Councilman for District 5. He is a member and leader of host of boards throughout the country. He is a Paine College alumnus.
Patricia Dawson, Esquire
Attorney Patricia Dawson practices in the area of Criminal Defense, Family, and Personal Injury law. She has been actively involved in the Sickle Cell Association of Hillsborough County for over eight (8) years. She became and advocate after observing the painful impact it had on a local Tampa family.
Joan Holmes, PhD
Dr. Joan Holmes is the Special Assistant to the President for Equity and Special Programs at Hillsborough Community College in Tampa, Florida. She formerly served 23 years at the University of South Florida as Assistant Dean of the Graduate School. She is a Ball State, GA State University, and NC A&T University Alumna. Read more...
Kevin Snead, PharmD
Dr. Snead is the founding dean of the University of South Florida College of Pharmacy and a tenured associate professor in the USF Department of Family Medicine. He has a long history of community service and is an alumnus of Xavier University.
Barbara Pittman, Esquire
Attorney Pittman is a former Assistant State Attorney and specializes in the practice areas of Family Law, Personal Injury, Criminal Defense, Juvenile Law and Sports Law. She is a member of a host of Bar Associations throughout the state of Florida and is an alumna of Florida State University.
Tiffany Craig, Esquire
Attorney Craig has been on the Sickle Cell Association of Hillsborough County Board since 2006. She has the sickle cell trait and is on a personal mission to raise funds for research and awareness about the disease. She owns a successful law practice and is a alumna of Florida State University and Texas Southern University.
Donna Douglas, Pharmacist
Pharmacist Douglas joined the group to help educate the community through enhancement of fundraising for financial support to promote initiatives. Ms. Douglass is a pharmacist with Walmart and a member of the Gamma Theta Omega Chapter of
Alpha Kappa Alpha Sorority, Inc., immediate past 2 term President.
Keith Harris, Vice President
Mr. Harris joined the group to make a difference in our community. He is the Vice President of Human Resources for the Tampa Bay Lightning and Amalie Arena. He is a member of a number of prominent boards in the Tampa Bay area involving health and education. He is an alumnus of Florida Agricultural and Mechanical University.
Jewel Hamilton, Agent
Jewel Hamilton is an insurance agent employed by Humana Marketpoint Inc., operating out of their Tampa, FL office.
Stacy Davis, PhD
Dr. Davis is a Post Doctoral Fellow at Moffitt Cancer Center. She is an alumna of Temple University, University of Medicine and Dentistry of New Jersey and University of Delaware.
Registration is Now Open for our 2017 Golf Tournament
Click on the Graphic Below to Download the Brochure, Complete and Send in Payment
For More Information on Sponsorship Opportunities, Please Call Keith Harris 813-352-9114 or Frank Reddick 813-247-5999
What is Sickle Cell Disease?
Sickle cell disease refers to a group of inherited red blood cell disorders. It is the most common genetic disease in the U.S. An estimated 70,000-80,000 Americans have sickle cell disease.
What is sickle cell trait?
A person with the sickle cell trait does not have ( and will never have) sickle cell disease. However, the presence of the trait may impact his/her children ( see "How do you get sickle cell disease?"). A person with the trait carries one abnormal hemoglobin gene inherited from one parent ( S, E, C, etc.) and one normal hemoglobin gene from the other parent ( type A). Typically, sickle cell trait is the presence of hemoglobin AS.
How do you get sickle cell disease?
Sickle cell disease is not contagious; you cannot "catch" it. You inherit it from your parents. If, for example, one parent has normal hemoglobin ( type AA) and the second parent has abnormal hemoglobin ( type AS, or the sickle cell "trait"), there is a 50% chance that each child will have the sickle cell trait, but they will not have sickle cell disease ( type SS).
If, however, both parents have type AS hemoglobin (one normal and one abnormal), there is:
These chances are the same for each child.
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Are there different types of sickle cell disease?
The three most common forms of the disease in the United States are:
Each of these can cause very painful "crisis" episodes and in severe cases lead to stroke, heart attack and death.
For more information - Sickle Cell Disease Information Links:
Sickle Cell Disease Association of America - http://www.sicklecelldisease.org
National Heart Lung and Blood Institute - http://www.nhlbi.nih.gov/health/health-topics/topics/sca/
Sickle Cell Society - http://www.sicklecellsociety.org
The Children’s Hospital of Philadelphia - http://www.chop.edu/consumer/jsp/division/generic.jsp?id=81077
WEP Sickle Cell Disease - www.wepsicklecell.org/
Sickle Cell Disease - http://www.medicinenet.com/sickle_cell/article.htm
This article is only for information purposes and not meant to take the place of a physician's medical diagnosis or advice.
Signs and Symptoms of sickle cell anemia
Signs and symptoms of sickle cell anemia often don't appear until an infant is at least 4 months old and may include:
When to see a doctor
Although sickle cell anemia is usually diagnosed in infancy, if you or your child develops any of the following problems, see your doctor right away or seek emergency medical care:
This article is only for information purposes and not meant to take the place of a physician's medical diagnosis or advice.
Sickle Cell Anemia TREATMENTS
Treatments and Drugs
Bone marrow transplant offers the only potential cure for sickle cell anemia. But finding a donor is difficult and the procedure has serious risks associated with it, including death.
As a result, treatment for sickle cell anemia is usually aimed at avoiding crises, relieving symptoms and preventing complications. If you have sickle cell anemia, you'll need to make regular visits to your doctor to check your red blood cell count and monitor your health. Treatments may include medications to reduce pain and prevent complications, blood transfusions and supplemental oxygen, as well as a bone marrow transplant.
Medications used to treat sickle cell anemia include:
Hydroxyurea (Droxia, Hydrea). When taken daily, hydroxyurea reduces the frequency of painful crises and may reduce the need for blood transfusions. Hydroxyurea seems to work by stimulating production of fetal hemoglobin — a type of hemoglobin found in newborns that helps prevent the formation of sickle cells. Hydroxyurea increases your risk of infections, and there is some concern that long-term use of this drug may cause tumors or leukemia in certain people. However, this hasn't yet been seen in studies of the drug.
Hydroxyurea was initially used just for adults with severe sickle cell anemia. Studies on children have shown that the drug may prevent some of the serious complications associated with sickle cell anemia. But the long-term effects of the drug on children are still unknown. Your doctor can help you determine if this drug may be beneficial for you or your child.
Assessing stroke risk
Using a special ultrasound machine (transcranial), doctors can learn which children have a higher risk of stroke. This test can be used on children as young as 2 years, and those who are found to have a high risk of stroke are then treated with regular blood transfusions.
Vaccinations to prevent infections
Childhood vaccinations are important for preventing disease in all children. But, these vaccinations are even more important for children with sickle cell anemia, because infections can be severe in children with sickle cell anemia. Your doctor will make sure your child receives all of the recommended childhood vaccinations. Vaccinations, such as the pneumococcal vaccine and the annual flu shot, are also important for adults with sickle cell anemia.
In a red blood cell transfusion, red blood cells are removed from a supply of donated blood. These donated cells are then given intravenously to a person with sickle cell anemia.
Blood transfusions increase the number of normal red blood cells in circulation, helping to relieve anemia. In children with sickle cell anemia at high risk of stroke, regular blood transfusions can decrease their risk of stroke.
Blood transfusions carry some risk. Blood contains iron. Regular blood transfusions cause an excess amount of iron to build up in your body. Because excess iron can damage your heart, liver and other organs, people who undergo regular transfusions may need treatment to reduce iron levels. Deferasirox (Exjade) is an oral medication that can reduce excess iron levels.
Breathing supplemental oxygen through a breathing mask adds oxygen to your blood and helps you breathe easier. It may be helpful if you have acute chest syndrome or a sickle cell crisis.
Stem cell transplant
A stem cell transplant, also called a bone marrow transplant, involves replacing bone marrow affected by sickle cell anemia with healthy bone marrow from a donor. Because of the risks associated with a stem cell transplant, the procedure is recommended only for people who have significant symptoms and problems from sickle cell anemia.
If a donor is found, the diseased bone marrow in the person with sickle cell anemia is first depleted with radiation or chemotherapy. Healthy stem cells from the donor are filtered from the blood. The healthy stem cells are injected intravenously into the bloodstream of the person with sickle cell anemia, where they migrate to the bone marrow cavities and begin generating new blood cells. The procedure requires a lengthy hospital stay. After the transplant, you'll receive drugs to help prevent rejection of the donated stem cells.
A stem cell transplant carries risks. There's a chance that your body may reject the transplant, leading to life-threatening complications. In addition, not everyone is a candidate for transplantation or can find a suitable donor.
Doctors treat most complications of sickle cell anemia as they occur. Treatment may include antibiotics, vitamins, blood transfusions, pain-relieving medicines, other medications and possibly surgery, such as to correct vision problems or to remove a damaged spleen.
Scientists are studying new treatments for sickle cell anemia, including: